“A Fighter’s Lullaby” for CHERUBS (children born with CDH)

As my second child is about to be born with the birth defect congenital diaphragmatic hernia (CDH), I can’t help but think about the lack of research funding for this not so rare birth defect. CDH occurs in 1 in every 2,500 pregnancies or 1,600 per year in the US . This translates to over 50,000 annually worldwide. With a 50% survival rate, that means there are over 25,000 children per year who die... 

Our Miracle Baby: Aidan’s Story of Surviving CDH

Editor’s Note: In honor of Pediatric Safety’s 4 year bloggiversary, we are publishing 4 of our favorite posts from the past, one each Friday for the next four weeks. This is our 1st – originally posted in July of 2011. Our thanks to Neil for sharing his story with us! *************************************************************************************************************************** When... 

Our Miracle Baby: Aidan’s Story of Surviving CDH

When I was asked to write a post about my son and the life-threatening birth defect he was diagnosed with at 37 weeks…I jumped at the opportunity. My son is a survivor but many are not, and I have been doing everything I can to help spread the word and try to increase awareness. The birth defect is called congenital diaphragmatic hernia (CDH). It’s definitely a mouthful but in layman’s terms,...