How To Survive When Your Special Child’s Medical Needs Resurface

When my child was born she ended up with some potentially serious medical conditions. They turned out to be minor – really minor – but could have been much, much worse. The other day one of them reared its ugly head (and I mean ugly). Frankly, I had almost forgotten about this particular bugaboo but just like riding a bike, it all came back to me.

When it hit, I could hardly breathe. It seemed that all the progress we had made went right out the window, or maybe I had just imagined it all. I couldn’t believe that I had actually let myself forget all that we had been through and I was angry with myself because I had dared to let my guard down. Realistically you can’t really live with your guard up 24/7 year after year. I know that now that the moment has passed…

So, here are some things that help me get through when it seems that we have taken a step backwards:

Keep it in perspective

Things may not going well today but that doesn’t automatically mean they will continue to spiral down tomorrow, or next week. Everyone deals with ups and downs, no matter how perfect their lives may seem on social media.

Get yourself help

Ask friends or family to take on some tasks to lighten your load, or outsource the work if you can afford it. If the prognosis is truly dire, seek professional counseling or a support group even if you think you don’t need it. Parents and caregivers of kids with special needs sometimes have to be superhuman, but superhuman still has the word human in it. Sometimes we humans need help.

Take care of yourself

Eating and showering may seem pointless when dealing with your child’s medical crisis (no matter how small) but you can’t take care of your child if you don’t take care of yourself. Find time to keep up with good nutrition, basic hygiene and sleep. These things will help with your stress level and overall health so you can be at your best for your child.

Find your outlet

Don’t feel pressured to load up on yoga classes or whatever the latest exercise trend might be…unless yoga works for you, of course. Maybe washing your car is therapeutic for you, or you feel truly relaxed while brushing your dog. Find what helps you unwind, whatever that looks like for you. And when you find it, let me know what it is because I am still looking for mine!

About the Author

Rosie Reeves is a writer and mother of three; including one with special needs. She works side-by-side with her daughter’s therapists, teachers and doctors. Rosie has also served as the Los Angeles Special Needs Kids Examiner. She can be reached at Rosie is a member of the PedSafe Expert team


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